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Issue Number 53            February 1, 1999

CONTENTS OF THIS ISSUE

  1. Do you have young patients with chronic HBV? Clinical trials using oral medication are enrolling children
  2. PKIDS is a great organization for parents of children with infectious diseases
  3. MMWR publishes article on the need for increased varicella surveillance
  4. "Hepatitis Control Report" is now available on the web
  5. A hepatitis B website from Singapore is an excellent site to visit
  6. Two new hepatitis B items are available on IAC's website

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(1)
February 1, 1999
DO YOU HAVE YOUNG PATIENTS WITH CHRONIC HBV? CLINICAL TRIALS USING ORAL MEDICATION ARE ENROLLING CHILDREN

An international multicenter clinical trial evaluating the safety and efficacy of an investigational oral medication for the treatment of hepatitis B in children is being conducted in the United States.

Children between the ages of 2 and 18 may be eligible if:
1. They have been HBsAg positive for at least 6 months before
    screening and at the time of screening
2. They are HBeAg positive and HBV DNA positive at the time of
    screening
3. They have a mean ALT raised to >1.3 x upper limit of reference
    range (established by the mean of one determination greater than or
    equal to 3 months before screening, and the screening value).

Additional inclusion/exclusion criteria apply for study eligibility.

For further information about the clinical trial and the locations of the sites in the United States where the studies are being conducted, contact PKIDS (Parents of Kids with Infectious Diseases) at 360-695-0293.

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(2)
February 1, 1999
PKIDS IS A GREAT ORGANIZATION FOR PARENTS OF CHILDREN WITH INFECTIOUS DISEASES

PKIDS (Parents of Kids with Infectious Diseases) is a nonprofit group for parents of children with infectious diseases. A small nonprofit with a huge mission, PKIDS works to:

1. Educate the public on infectious diseases and the prevention of the
    spread of infectious diseases through videos, literature, speeches, and
    other avenues of communication
2. Be a resource of emotional, financial, educational, and informational
    support for children with infectious diseases and their families
3. Alert the offices of pediatricians and infectious disease specialists to
    PKIDS' existence so that they may tell their patients
4. Create a repository of the latest information and resources about all
    chronic infectious diseases which can affect children
5. Eliminate, via education through videos, literature, speeches, and
    other avenues of communication, the stigma which is generally
    attached to those living with an infectious disease

The PKIDS website includes the feature "Ask Dr. Jane," where individuals can have their questions answered by Dr. Jane Ellen Aronson, Chief of Pediatric Infectious Diseases and Director, International Adoption Medical Consultation Services at Winthrop Pediatric Associates in Mineola, New York. For more information about PKIDS, visit their website at http://www.pkids.org/pkids.htm or call 360-695-0293.

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(3)
January 29, 1999
MMWR PUBLISHES ARTICLE ON THE NEED FOR INCREASED VARICELLA SURVEILLANCE

An article entitled "Evaluation of Varicella Reporting to the National Notifiable Disease Surveillance System -- United States, 1972-1997" was published in the January 29, 1999, issue of the MMWR. The article describes "changes in the annual reported incidence of varicella from 1972 to 1997 and discusses the need for increased surveillance with the availability of a vaccine."

The "Editorial Note" states that "CDC encourages states and local areas to make varicella a reportable disease, to investigate and report varicella deaths to CDC, and to establish aggregate case reporting either by enhancing existing surveillance systems or by establishing school, day care, and/or health-care-provider-based reporting of varicella."

To access the complete article in text format, click here:
http://www.cdc.gov/epo/mmwr/preview/mmwrhtml/00056339.htm

TO GET A FREE ELECTRONIC SUBSCRIPTION TO THE MMWR (delivered weekly), go to the MMWR website and sign up. When you sign up, you will also receive all new ACIP statements which are published as MMWR's "Recommendations and Reports." To get to the MMWR website, click here: http://www.cdc.gov/epo/mmwr/mmwr.html

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(4)
February 1, 1999
"HEPATITIS CONTROL REPORT" IS NOW AVAILABLE ON THE WEB

The "Hepatitis Control Report" is a quarterly newsletter devoted to public health control of viral hepatitis. Edited by Frederic E. Shaw, MD, MPH, the "Hepatitis Control Report" is mailed to 15,000 U.S. practitioners interested in infectious diseases and public health. Since December the "Hepatitis Control Report" (including past issues) has been available on the Internet at:  http://www.hepatitiscontrolreport.com

If you'd like to subscribe to a hard copy, call 610-664-2793. It's free!

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(5)
February 1, 1999
A HEPATITIS B WEBSITE FROM SINGPORE IS AN EXCELLENT SITE TO VISIT

"The Hepatitis B Info-Page" website aims "to provide information at a level which is above the normal standard of a layman, yet below the standard of a scientific article." The website includes general information about hepatitis B, a glossary of terms, anatomical drawings, micrographs of liver cells, a chat room, as well as specialized facts about hepatitis B in Singapore and Malaysia.  Access this site at:
http://www.fortunecity.com/millenium/quarrybank/159/contents.htm

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(6)
February 1, 1999
TWO NEW HEPATITIS B ITEMS ARE AVAILABLE ON IAC'S WEBSITE

"You are not alone! Information for young adults who are chronically infected with hepatitis B virus" is a 4-page patient information piece that includes advice for teens on how to take care of themselves as well as protect others from their infection. The authors of this article -- Karen Y. Wainwright, RN, BS, CCRA, Department of Internal Medicine, Alaska Native Medical Center and Sarah Jane Schwarzenberg, MD, Department of Pediatrics, Division of Gastroenterology, University of Minnesota -- have counseled over 1000 teens with chronic hepatitis B virus
infection.
To download a camera-ready version of "You are not alone!" click here:
http://www.immunize.org/catg.d/4118.pdf

To obtain the text version of "You are not alone!" click here: http://www.immunize.org/catg.d/4118.htm

Also newly available on IAC's website is "Tracking hepatitis B patients and their contacts" which consists of two revised hepatitis B tracking pieces:
1. "Patient flow sheet to track patients who are chronically
infected with HBV"
2. "Hepatitis B testing and vaccination tracking sheet for
moderate- and high-risk households"

To download camera-ready copies of these two items, click here: http://www.immunize.org/catg.d/2180.pdf

To obtain the text versions of these items, click on the URLs below.
"Patient flow sheet to track patients who are chronically infected with HBV": http://www.immunize.org/catg.d/2180a.htm

"Hepatitis B testing and vaccination tracking sheet for moderate-
and high-risk households": http://www.immunize.org/catg.d/2180b.htm

 

Immunization Action Coalition1573 Selby AvenueSt. Paul MN 55104
E-mail: admin@immunize.org Web: http://www.immunize.org/
Tel: 651-647-9009Fax: 651-647-9131

This page was updated on February 1, 1999